Hey, nice to meet you. I’m Michelle. I’m a novelist, a radio professional, and a disabled person. I have ankylosing spondylitis, an immune-mediated auto-inflammatory disease that’s trying to destroy my hips, seize my rib cage, and turn my spine into one lone bone — oh, and chew on the rest of my joints for snacks. … Continue reading
During 2020, I wrote one novel at 101,350 words, another at 63,026 words, and a novella at 13,000 words — and I still felt like I could have done more. Last weekend, I finished a nonfiction piece that had taken me over a week to write and painted a 36″ x 18″ canvas, yet I … Continue reading
CW: mentions of eugenics and ableism Warm greetings from your friendly neighbourhood SpAN editor! I just wanted to say I’m aware that many of us Spoonies are feeling tense right now because of the pandemic. I definitely am. But the Spoonie Authors Network is a forum of caring and community, and we want it to … Continue reading
I had surgery recently on my foot to remove a bone chip and arthritis bone spurs. The pain in my foot wasn’t terrible but it had changed my gait, adding to the workload in my lower spine and making one hip pop out of joint daily. I have arthritis and degenerative disc disease, so I … Continue reading
I feel better these days. I’ve done and am doing a lot of things for myself: I’ve moved to a position with less stress and fewer hours at work; I’m seeing a lot of doctors; I’m finally on the right meds after years of trial and error; and, I’m eating better. My good mental health … Continue reading
Editor’s note: This is Pat Flewwelling’s first post with the Spoonie Authors Network. Welcome, Pat! Grampa used to park his car umpteen kilometers away from work and then bike the rest of the way. By then, his hip was about 75% disintegrated, and he used a cane. In his off-hours, he worked for Gideons and … Continue reading
The other day, a buddy of mine and I were discussing how the slightest medical procedures or even routine vaccinations can greatly impact our chronic fatigue symptoms. We can lose spoons just like POOF! I told my friend that having more time alloted to their fatigue budget would really help. Then I explained how in … Continue reading
Disclaimer: The following article is based on Laurie’s personal experiences with managing chronic pain. Always consult your own medical professionals to ensure you’re getting the best advice for you! Don’t get me wrong, summer is my favourite season. Usually. It’s hot, so the cold doesn’t make my bones ache. It’s dry, so the damp doesn’t … Continue reading
I have been trying so hard to stay out of social media arguments these days, stopping myself from reading or writing comments. Mostly because I find it comes to nothing in the end and drains my spoons. But then a thing happened this week I couldn’t ignore. A quote appeared on my Twitter timeline from … Continue reading
