Editor’s note: As promised, this Fall season brings us a new series called Managing Spoons in 2020. It’s been a heck of a year for many of us, so I decided to ask fellow Spoonies how they’ve been handling it. Always lovely to have you on the Spoonie Authors Network, Jamieson! Can you please introduce yourself … Continue reading
Tag Archives: Multiple Sclerosis
Sparkling in the Dark
I hit a wall a few weeks ago. Not a literal wall — more a wall within myself — one that had neither substance or form, but was strong nonetheless. I hit the wall so hard that I hurt something within myself. I had ignored the warning signs and pushed forward until the wall within … Continue reading
Spoon Stealers, Week 3: The Unicorn Who Farted Sparkles
I am my own worst enemy. I tend to spiral downwards when issues get to me, and I lose myself in the shadowy labyrinth. I know its walls very well and have wandered them for so long, they are a second home to me now. Looking back, I see spoons littering the dirt floor of … Continue reading
“Get over it. You’re a Beta now.”
“Get over it.” “You need to move past this.” “Accept it.” “This is the new you, Bob.” These are the tough but loving—albeit difficult—words I’ve been hearing for the last fourteen months from my family, friends, and doctors. This, after a severe Multiple Sclerosis attack paralyzed the right side of my body, damaged my brain … Continue reading
Learning to Write in a Different Way
I have always written. Words are like breathing to me. They are my way of living life, of connecting with others, of engaging with myself. They are the way I’m able to achieve my dreams, albeit on paper. I was born with Spastic Cerebral Palsy. This causes some sort of pain twenty-four hours a day, … Continue reading