Remembering I’m Disabled
chronic fatigue / chronic pain / Fibromyalgia / Spoonie Challenges / Working

Remembering I’m Disabled

I use a mobility device. I’m on the autism spectrum. I manage mental illness, chronic pain, and chronic fatigue. I’m the creator of the Spoonies Authors Network and co-editor of the Nothing Without Us anthology. A huge part of my existence is now about promoting the works and voices of disabled/Deaf/neurodiverse folks and those who … Continue reading

Do you have a fatigue budget?
chronic fatigue / Living fully / mental health / Spoonie Challenges / Working

Do you have a fatigue budget?

The other day, a buddy of mine and I were discussing how the slightest medical procedures or even routine vaccinations can greatly impact our chronic fatigue symptoms. We can lose spoons just like POOF! I told my friend that having more time alloted to their fatigue budget would really help. Then I explained how in … Continue reading

When Illness Becomes a Dragon
body celebration / chronic fatigue / Living fully / Myalgic Encephalomyalitis / Spoonie Challenges

When Illness Becomes a Dragon

I feel that the image of an unruly beast of fierce proportions best conveys just what place incapacitating chronic illness occupies in one’s life. This beastie is like a tantrum-prone toddler that keeps you in a state of constant vigilance for fear  it will bring you down so low, getting back up might take longer … Continue reading

Everyone’s writing, and I’m all like…
Fibromyalgia / Spoonie Challenges / Writing journey

Everyone’s writing, and I’m all like…

Ever feel like everyone’s writing but you? I do. Now that I’m published and have all these new writer friends and acquaintances on social media, I’m able to read updates about their word journeys. To me it feels like they’re constantly writing. Meanwhile, I’m all like, Yeah, I need to lie down now.  After working intensely on Life in … Continue reading