I don’t know about you, but 2022 wore out this Spoonie editor-in-chief. That’s the thing about disabled-led initiatives—sometimes we run low on spoons. And this year, I seemed to be constantly operating on a spoon deficit. Still, some cool things happened! New contributing authors We are always grateful for authors who volunteer their time to … Continue reading
Tag Archives: fatigue
Remembering I’m Disabled
I use a mobility device. I’m on the autism spectrum. I manage mental illness, chronic pain, and chronic fatigue. I’m the creator of the Spoonies Authors Network and co-editor of the Nothing Without Us anthology. A huge part of my existence is now about promoting the works and voices of disabled/Deaf/neurodiverse folks and those who … Continue reading
I’m not a ‘real’ Spoonie.
It’s just aches and pains; I’m not a real spoonie. That’s what my brain tells me and has been telling me for the past five years. I was first diagnosed at 30 years old with mild Rheumatoid Arthritis (RA) in the joints of my big toes. At the time, it felt like I had dislocated … Continue reading
Do you have a fatigue budget?
The other day, a buddy of mine and I were discussing how the slightest medical procedures or even routine vaccinations can greatly impact our chronic fatigue symptoms. We can lose spoons just like POOF! I told my friend that having more time alloted to their fatigue budget would really help. Then I explained how in … Continue reading
Doing a Perfect Job with an Imperfect Brain
Yikes. This post is not easy for me to write because it could cause potential clients to question my competence. So, let me state up front that I’m good at my day job and I have witnesses who’ll back me up! I am an editor. I take manuscripts from indie authors and sort out word … Continue reading
When Illness Becomes a Dragon
I feel that the image of an unruly beast of fierce proportions best conveys just what place incapacitating chronic illness occupies in one’s life. This beastie is like a tantrum-prone toddler that keeps you in a state of constant vigilance for fear it will bring you down so low, getting back up might take longer … Continue reading
The Journey Begins
A lot of authors say they’ve been writing all their lives. I’m no exception. I wrote nonstop, pausing only for university. I barely had time to read unless it was a scientific journal. After graduation I started submitting short stories. I even wrote a few novels. When the pile of rejections kept growing, I decided … Continue reading
I Give Myself Permission
Making stuff up has always been my mental sanctuary. Writing and drawing started out as things I did to escape both pain and boredom, and they quickly became the centre of my life as I turned them into passion and career. They became one of the driving forces in my life. I poured energy into them … Continue reading
Everyone’s writing, and I’m all like…
Ever feel like everyone’s writing but you? I do. Now that I’m published and have all these new writer friends and acquaintances on social media, I’m able to read updates about their word journeys. To me it feels like they’re constantly writing. Meanwhile, I’m all like, Yeah, I need to lie down now. After working intensely on Life in … Continue reading