My body is twitchy. A tiny increase in pressure, a centimetre difference in a sidewalk slope, even a minuscule shift of someone’s buttocks on the sofa cushion beside mine can cause waves of pain to fire up my spine, sliding my bad hip out of place and burning through my thighs and calves. I wince … Continue reading
Let’s discuss tomorrow, today, and right now. Tomorrow I am going to take the first step towards getting some (very) part-time work by being interviewed at the local Vocational Rehabilitation office. Compared to the majority of the people they see, my Bachelor’s degree, my year of graduate school, various successful professions, and being a business … Continue reading
Lately, I’ve seen a co-opting of the phrase ‘I’m out of spoons’, by people who are not dealing with disabilities and/or chronic illnesses. To be frank, I wish this would stop. I reckon these people don’t know what it’s truly like to have to chose between washing yourself and making your meal. That’s the way it is when you are a spoonie. Some days you might have so little stamina, you must make a choice between eating and bathing. Other times, you might think you have enough spoons to get through the day when suddenly you realise no more spoons exist, and the great cash happens. It’s awful, to be honest.
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While I would never wish any kind of chronic disease or condition—physical or mental—on anyone, I sometimes wish my condition could be seen. Maybe I just wish I could be seen, but then again, part of my problem is that I can’t even see myself anymore. I have had the explanation for this down pat … Continue reading
Ever feel like everyone’s writing but you? I do. Now that I’m published and have all these new writer friends and acquaintances on social media, I’m able to read updates about their word journeys. To me it feels like they’re constantly writing. Meanwhile, I’m all like, Yeah, I need to lie down now. After working intensely on Life in … Continue reading
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