Learning the Hard Way
neurodiversity / Post-concussion syndrome / Spoonie Challenges / Working / Writing journey

Learning the Hard Way

Sometimes you gotta learn things the hard way. Typically that refers to making the mistakes people tried to warn you about. In this case, learning the hard way meant having a concussion (two, actually) axed the coping skills that used to work for me and to finally learn some useful things about myself: 1) I was … Continue reading

Welcome to Disability (a House with Infinite Rooms)
Activism and Advocacy / Connecting / Getting support / Spoonie Challenges

Welcome to Disability (a House with Infinite Rooms)

Hi there. You’re new here. You and maybe one hundred forty-one million, five hundred thousand others. That’s a guess. An imperfect one, because the data is young and ever-changing and because lots of folks lived in this house before a brand-new Goldilocks broke in and started judging our food and lodgings. Too metaphorical? Probably. Let … Continue reading

Paddling, with a belt on
ankylosing spondylitis / Spoonie Challenges / Writing journey

Paddling, with a belt on

Hey, nice to meet you. I’m Michelle. I’m a novelist, a radio professional, and a disabled person. I have ankylosing spondylitis, an immune-mediated auto-inflammatory disease that’s trying to destroy my hips, seize my rib cage, and turn my spine into one lone bone — oh, and chew on the rest of my joints for snacks. … Continue reading

Managing Spoons in 2020, featuring Jamieson Wolf
Cerebral Palsy / Managing Spoons in 2020 / Multiple Sclerosis / Spoonie Challenges

Managing Spoons in 2020, featuring Jamieson Wolf

Editor’s note: As promised, this Fall season brings us a new series called Managing Spoons in 2020. It’s been a heck of a year for many of us, so I decided to ask fellow Spoonies how they’ve been handling it. Always lovely to have you on the Spoonie Authors Network, Jamieson! Can you please introduce yourself … Continue reading