I spent 2014 in an acute state of fear. Yeah, I know that seems hyperbolic, but I was quite terrified. The chronic pain I had been experiencing from the neuropathy of fibromyalgia had levelled up to a state where it felt like someone had injected several areas of my body with burning hot, vibrating curling … Continue reading
Category Archives: Living fully
Outrunning the Invisible
During 2020, I wrote one novel at 101,350 words, another at 63,026 words, and a novella at 13,000 words — and I still felt like I could have done more. Last weekend, I finished a nonfiction piece that had taken me over a week to write and painted a 36″ x 18″ canvas, yet I … Continue reading
Writing from Within
A few years ago, someone asked me if I would ever write a novel with a character who had MS. I told him no. My reasons for this at the time seemed simple. I already wrote a blog about living with multiple sclerosis and cerebral palsy. That seemed like enough for me. My thought at … Continue reading
I Built My First Disabled Community With a Fictional Character
I’m sure many of you will read that title and think: One too many cupcakes, Cait? Is all that sugar affecting your perception? Nope. It’s true. My first entry into feeling in community with a disabled person was when I bonded with Noola Quirk from Life in the ’Cosm. Okay, yeah, I know it seems … Continue reading
Do you have a fatigue budget?
The other day, a buddy of mine and I were discussing how the slightest medical procedures or even routine vaccinations can greatly impact our chronic fatigue symptoms. We can lose spoons just like POOF! I told my friend that having more time alloted to their fatigue budget would really help. Then I explained how in … Continue reading
Spoon Stealers, Week 3: The Unicorn Who Farted Sparkles
I am my own worst enemy. I tend to spiral downwards when issues get to me, and I lose myself in the shadowy labyrinth. I know its walls very well and have wandered them for so long, they are a second home to me now. Looking back, I see spoons littering the dirt floor of … Continue reading
Not Without Our Consent
Last week some fellow Spoonies shared something with me that really ticked me off, and I’d like to open up the topic of consent to a level some of you might not have thought about before. Those of us who use mobility devices such as walkers, rollators, and wheelchairs—to name a few—not only consider these … Continue reading
Writing Through the Summer from Hell
Disclaimer: The following article is based on Laurie’s personal experiences with managing chronic pain. Always consult your own medical professionals to ensure you’re getting the best advice for you! Don’t get me wrong, summer is my favourite season. Usually. It’s hot, so the cold doesn’t make my bones ache. It’s dry, so the damp doesn’t … Continue reading
You must write every day—my favourite BS notion.
I have been trying so hard to stay out of social media arguments these days, stopping myself from reading or writing comments. Mostly because I find it comes to nothing in the end and drains my spoons. But then a thing happened this week I couldn’t ignore. A quote appeared on my Twitter timeline from … Continue reading