Just to set the record straight, I’m not brave, okay? I live with spastic cerebral palsy (CP) and relapse-and-remitting multiple sclerosis (MS). I can’t count the number of people who have called me brave. I always smile and nod when they say this, but the truth is that bravery has nothing to do with it. … Continue reading
Category Archives: Cerebral Palsy
How do you make *this* sexy? Why representation in fiction matters.
“How do you make this sexy?” a reader asked me, gesturing to her wheelchair in the middle of one of my sex education Q&A sessions. The question stumped me because the answer isn’t an easy one. The short version is: You don’t. There isn’t anything inherently sexy about using a wheelchair or a walker, or having … Continue reading
Mine for Keeps
I remember very distinctly the first time I read about “someone like me” in a book. I couldn’t have been more than ten or twelve at the most, and the book was Mine for Keeps by Jean Little. The main character, Sally, had cerebral palsy—just like me. She wasn’t the sad, crippled friend that you … Continue reading
Chronic Fatigue: My Story
I was diagnosed with chronic fatigue in September 2016 when I just started college. Overall my concentration was low and I kept falling asleep in classes. I have no idea where this never-ending tiredness came from, no matter how much I slept. I thought it was the stress of college, as I’ve been out of … Continue reading
Doing ‘It’ with a Disability
The first piece of writing advice that I was given was: Write what you know. Throughout my twenty years as a writer, I’ve happily ignored that advice. I’ve written fantasy novels, horror stories, and countless short stories and poems. And throughout all of them, I wrote only what pleased me, what I felt called … Continue reading
Ten Years of Words
Most people don’t know it took me almost three years to write Lust and Lemonade. I started it on December 29, 2013 and finished the first draft on the May 23, 2015. Writing Lust and Lemonade was a labour of love, yes, but it was also one of self-discovery and healing. When I was diagnosed … Continue reading
A Patchwork Quilt of Words
I had thought I would eventually stop writing poems. I only started writing them in the first place to quiet the words in my head that needed to be free, and wanted air so they could thrive. When I was struck with Multiple Sclerosis in 2013, I could only write a handful of words at … Continue reading
Learning to Write in a Different Way
I have always written. Words are like breathing to me. They are my way of living life, of connecting with others, of engaging with myself. They are the way I’m able to achieve my dreams, albeit on paper. I was born with Spastic Cerebral Palsy. This causes some sort of pain twenty-four hours a day, … Continue reading